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Establishing consumer panels

The key role of Panel members at The Institute is to offer health consumer perspectives and lived experiences within the context of their respective the Institutes research programs. This provides consumers the opportunity to contribute to current and future research activities. Consumer panel members may also assist in identifying the gaps, barriers, strengths, and opportunities for improvement in Consumer and Community Involvement (CCI) within the research program. The George Institute for Global Health currently has three consumer panels: Brain Health, Cardiovascular Health, and Kidney Health. Role of consumer panel While each consumer panel has established its own processes, Panel member’s involvement includes: Input into grant applications and research proposals Providing advice and feedback on study design, patient-centred outcomes, and patient-facing materials Assisting with the communication and sharing

Consumer and Community Involvement in health research projects

What is Consumer and Community Involvement in health research? Consumer and community involvement in health research is about ensuring that consumers and community members have a say in the research conducted and that the research best supports consumer and community needs and interests. Consumers and researchers work together to provide the best value for, and have the greatest impact on, the wider community. Consumers can be involved from the very beginning such as forming questions and co-designing studies with researchers, and throughout all stages of the research process. What does it look like? Consumers can be involved at any stage of the research cycle shown below. The level of involvement will vary depending on the consumer’s role and the type of research study. STAGE 1 - DECIDING WHAT TO RESEARCH Consumers can help identify and prioritise research questions. Examples include:   participating in and sharing ideas at relevant consumer/c

Consumer and Community Involvement Program

The CCI Program was established to ensure meaningful and fit-for-purpose involvement of those most impacted by health research, as guided by the NHMRC statement on Consumer and Community Involvement: “The active involvement of consumers and community members in health and medical research benefits the quality and direction of research. Consumer and community involvement is about research being carried out with or by consumers and community members rather than to, about or for them. The CCI Program recognises the valuable insights and expertise of those with lived experience and that members of the community can contribute to all areas of research. The Program supports the integration of consumer and community members in all levels of health and medical research. Role of Consumer and Community Involvement program The CCI Program is a centralised support service for consumers and researchers. It provides the following services for the George Institute: Advi

Register your interest in becoming a part of our Consumer and Community Network

We welcome you to express your interest in the Institute’s Consumer and Community Network. Please complete the following secure form and a member of our team will contact you to discuss further.

Opportunities for health consumers and community members

Working together with consumers and community members helps the Institute achieve high-quality research that has the greatest impact on the health and wellbeing of Australian people. The Institute is guided by the work of peak bodies such as the National Health and Medical Research Council and Consumers Health Forum of Australia. When using the term ‘consumer’, we are referring to patients and potential patients, people who use health care services, and their carers or family members. When we use the term ‘community members’ we refer to those who share an interest in our research – including sub-groups of the Australian population, and healthy members of our community who want to prevent ill-health. Below are key ways that consumers are involved in health research. Consumer, Carer, and Community Advisory CommitteeThe CCAC oversees consumer involvement at the Institute. The committee works with key staff, including the Executive team and research program

Professor Anushka Patel

Profile

Professor Anushka Patel is CEO and Director of The George Institute for Global Health and Scientia Professor at UNSW, Sydney. She is a cardiologist with research interests in the prevention and management of common chronic conditions through large-scale clinical trials and implementation science. 

Anushka undertook her medical training at the University of Queensland, with subsequent postgraduate research degrees from Harvard University and University of Sydney. Anushka is a Fellow of the Royal Australasian College of Physicians and of the Australian Academy of Health and Medical Sciences and is a Director and Trustee of the Pulmonary Vascular Research Institute.

Associate Professor Brendon Neuen

Profile

Associate Professor Brendon Neuen is Lead Global Clinical Trialist at The George Institute for Global Health, a nephrologist, and Director of Kidney Trials at Royal North Shore Hospital. He is Co-Chair of SMART-C (SGLT2 Inhibitor Meta-Analysis Cardio-Renal Trialists' Consortium; www.SMART-C.net), Scientific Director of the CLARITY-IgAN Consortium (Collaborative Longitudinal Assessment of Randomised Interventions and Therapies; www.CLARITY-IgAN.org) and holds senior leadership roles in multiple global, late-phase drug registration trials evaluating therapies to prevent kidney failure and its cardiovascular complications.

A/Prof Neuen's research has informed more than 30 clinical practice guidelines and consensus statements. He is actively involved in the development of national and international standards, including for KDIGO and the American Society of Nephrology. A/Prof Neuen has authored over 150 peer-reviewed publications, including works in the New England Journal of Medicine, The Lancet, JAMA, and Nature Medicine. He serves on the editorial boards for flagship journals of the American Society of Nephrology, European Renal Association, and the American Diabetes Association.

A/Prof Neuen is the author of over 150 peer-reviewed publications in general medical journals including The Lancet, BMJ and Nature Medicine, and specialty journals including Lancet Diabetes and Endocrinology, Circulation, and the Journal of the American Society of Nephrology. He serves on the Editorial Boards of the American Society of Nephrology and Nephrology Dialysis and Transplantation (flagship journal of the European Renal Association). His work is supported by the National Health and Medical Research Council of Australia, New South Wales Health, the Ramaciotti Foundation, as well as philanthropic sources, and has been recognised through multiple awards, including the Royal Society of New South Wales Ida Browne Medal, and the American Heart Association's Paul Dudley White International Scholar Award.

Dr Devarsetty Praveen

Profile

Dr. Devarsetty Praveen is a public health expert with deep knowledge of epidemiological research and a strong focus on using system-based innovations to tackle inequities in chronic disease care. He serves as the Director of the NIHR-funded Global Health Research Center for NCDs and Environmental Changes, as well as the Director of the Primary Health Care Research Consortium Secretariat. In these roles, he leads research efforts that are policy-relevant and aim to strengthen high-quality primary health care systems globally.

Dr. Praveen has extensive experience in designing and implementing large-scale primary care research projects, particularly using digital health strategies (e/m-health) in countries such as India, Indonesia, Bangladesh, Myanmar, and Thailand. He applies mixed-methods research and implementation science to integrate proven evidence into routine practice, improving access to quality health care.

He is the elected Co-Chair of the Hypertension Research Program within the Global Alliance for Chronic Diseases, a network of major research funding agencies dedicated to addressing chronic non-communicable diseases. Dr. Praveen holds a PhD in Medicine from the School of Public Health, University of Sydney.

WHO SEARO and The George Institute for Global Health, India collaborate on digital health and AI for primary care and non-communicable diseases

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Perspectives, practices, and environmental footprints related to menstrual hygiene among girls and women in India – a pilot study [PEnMen-pilot]

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